No effective treatment, no cure, NO KNOWN METHOD a prudent individual can take to prevent getting this disease. A rare disease you say? You say only 2 out of a million people will get this disease?
How about I mention that the life time risk of getting this disease has been quoted as high as 1 in 600 in a few university medical publications? How can anyone live in peace with this silent killer on the loose especially when one stops to think that you or your loved ones could be next?
This disease kills in the region of 5000 Americans each year. Yet the media seem more bent on reporting about Paris Hilton while issues that really matters are left to the side out of view. Why hasn’t there been a more concerted global effort gone to combat such a devastating disease?
Subscribe to anyone
Thank -you ,for helping raise awareness for this disease !!!
American Express currently has a contest where $5 million dollars will go to fund a project.
Help Stop ALS has currently made it to another round of voting. But ,needs all of your support to make it to the final 5.
Please vote here http://www.membersproject.com/intro.htm if you are an Amercan Express cardholder to help stop ALS.
lisag on July 17th, 2007 at 12:26 pm | Link
You comments here are right on target. I can’t imagine what it must be like to suffer with something like ALS. Want to have some fun pretend you have it. Sit in a chair and see how long you can go without moving scratching and can barely breath? Try that for a few minutes and you will see what someone who suffers with this, goes through every day. To make matters worse modern science which can invent super computers, send men to the moon, and etc. doesn’t even know what causes this. Think that’s bad enough, there is no treatment, no cure and you are virtually written off by the medical establishment when you get this disease. These are all unacceptable answers in the world of modern science. To make matters even more interesting there are people with cancer that have been written off, but are still with us today. There are people with heart conditions and even aids that are walking miracles. These things all give HOPE for a patient. What hope does society give for an ALS patient? The best one I know of http://www.als.net and I would urge everyone reading this to go there and show your support. What’s a few dollars to the average person?
Now to continue my rant. Go out and smoke a lot and you will get cancer. Expose yourself to the wrong substances, nuclear material and etc. and your cancer odds go way up. Fool around sexually a lot and you will greatly increase your chance of AIDS. Eat too much fatty foods and you will get heart disease. With all that said, everyone has some control in the diseases they get. ALS however occurs at random, no known cause and cases occur sporadically with NO FAMILY HISTORY. 90 to 95% of all ALS cases are sporadic with no family history. That truly sucks. Fortunately it’s rare, but do the math how rare is 1 in a 1,000? Let’s say the odds were one in a million, you wouldn’t think it was but so rare when you are the one unlucky enough to get it.
Now with everything I’ve said here I don’t have ALS and I thank god every day that I don’t. I will however ask god to bless everyone that does have it. I can’t imagine what it must be like for both you and your families as I think ALS is the most dreaded disease known to man. The people I know with ALS though are simply remarkable. Resilient, outgoing, and very courageous in the light of what they face. I can’t say enough good things about them. My prayers are with you all.
Keithf on July 20th, 2007 at 2:25 pm | Link